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Medical Card Expert Panel TCGI Submission

On behalf of our members, TCGI has made a formal submission to the Expert Panel established by the HSE to review medical card eligibility based on medical need. Please find our submission HERE.

TCGI has submitted a generic response with answers that would be averaged across our members. We appreciate that indviduals may be impacted differently so we would encourage you to review our submission under Question 5 in particular, as you may have different answers in your own particular circumstances.

We would invite you add weight to the campaign and to have your own say by making a submission online, by email or in writing to the Expert Panel. More details on the HSE website HERE. Note that closing date for submissions is Monday 30th June 2014.



Mini Marathon 2014

!! THANK YOU !!

A big thank you to everyone who walked, jogged or ran the Flora Dublin mini marathon for TCGI  this June Bank Holiday weekend.

Its one of our biggest fundraisers so we appreciate everyones support.

The members of TCGI have offered a wealth of support for 20 years. We understand that every person’s needs are unique as Turner Syndrome affects each girl and woman in a different way. 

In brief, you should know the following about us: our organisation was established in 1991 and has been responsible for providing outstanding information, resources and support for those affected by Turner Syndrome ever since.

At present, our website is still in its infancy. We are making an effort to present you with our entire spectrum of information and support resources as soon as possible. At this point we can provide you with general information and links relevant to Turner Syndrome, and with our contact details. The emphasis of our site is Education, Information and Support

Please check back regularly. 

If you are not familiar with our organisation and your first contact with us is online, we would be pleased to hear from you! Please let us know what your needs and questions are, we will be more than happy to help.

You can reach us at 1890 815 667 for the price of a local call. We are looking forward to hearing from you. You can also contact us at our e-mail address: info@tcgi.ie.  

We would like to acknowledge and thank our sponsors Merck SeronoNovo Nordisk and Pfizer without whose support our group could not continue.  

grdoTCGI is a member of the Genetic and Rare Disorders Organisation

Click HERE to visit their website

Registered Charity number CHY19100 - Copyright (c) TCGI 2014