Welcome to the TCGI Newsletter.
This is the first electronic version of our Newsletter. We hope to publish regular snippets of information of interest on this page. We are open to suggestions, so if there is anything you would like information on, please let us know.
Nancy.
Joint All Ireland Open Day (TCGI/TSSS)
Theme of the day is to bring families together across Ireland.
Saturday 25th February 2012 (10am to 3pm)
Newry Arts Centre, 1A Bank Parade, Newry, BT35 6HP.
TCGI & TSSS Committee and local doctors and nurses will be attending to offer support and information about Turner Syndrome. Details call:
Nancy (TCGI) - 1890 815 667 .. or .. Arlene (TSSS) - 0141 952 8006
Special Accommodation Rate in the Canal Court Hotel
Special rates: for on 24th and / or 25th February;
Overnight Accommodation with Full Irish Breakfast £ 50pps
2 Nights Bed & Breakfast with Full Irish Breakfast £ 89pps
Guests will also have full complimentary use of the health & leisure complex throughout their stay, free wifi & free secure car parking.
Codes for booking online available from Fri 20/1/12 after 5pm
TCGI1 - 1 Night
TCGI2 - 2 Night
AGM Registration 2012
TCGI ANNUAL CONFERENCE 2012
Keynote Speaker
Dr. Siobhán McQuaid, Endocrinologist
"The patient with Turner's syndrome: care in the adult clinic"
Other speakers to be confirmed
SATURDAY, 24th MARCH 2011
MAUDLINS HOTEL, NAAS, CO KILDARE
The Maudlins hotel is located right off the N7 (exit 9, "Sallins / Naas North") in Naas Co. Kildare. Directions can be found on:
www.maudlinshousehotel.ie/location.htm
If you require lodging for the evening, please mention you are attending the Turner Contact Group Ireland conference when you ring the hotel.
! CONFERENCE REGISTRATION IS FREE !
Please register here for children's programme
If you are planning to attend our Annual Conference & AGM, we would appreciate it if you would take a few moments to register. Registration is free and without obligation whether you are a guest or a member. If you are not a currently paid up member, and wish to join or renew, you can register as a member HERE first. Or if you prefer, you are welcome as a guest, and we will send you further details after you sign up for the conference.
Run A Muck Challenge
! A special word of thanks !
To Lyanne and Ray who participated in the Run-A-Muck Challenge on October 16th in the grounds of Clonkeeran House, Johnstown Bridge, Co Kildare and raised funds for TCGI.
Well done !
Annual Conference 2010
Saturday 6th March 2010, Naas, Co Kildare
Our Annual Conference & AGM this year moved from Dublin to the neighbouring county of Kildare. We had a great turn out of adults and childen. It was an informative and interesting day, with three guest speakers cover a range of topics. There was also plenty of time to meet and chat with others throughout the day.
The presentations are available in our DOWNLOADS section
International TS Conference 2009
The 7th International Turner Syndrome Conference was held on 27th -30th August 2009 in Copenhagen, Denmark.
A group of six from Ireland attended this year's conference. As a group we found it beneficial in many ways and highly enjoyable! It was wonderful to meet so many people from so many different countries just to chat and get to know one another. The last international conference was held in Australia in 2003 and a group from Ireland also travelled.
Speakers included:
Dr. Claus Højbjerg Gravholt from the hospital in Aarhus, Denmark
Heart Study, in relation to Turner Syndrome
Dr Line Cleemann from the hospital in Hillerød, Denmark,
Turner syndrome in childhood and adolescence - a multifaceted state of health
Annual General Meeting 2009
The Turner Contact Group Ireland (TCGI) annual general meeting was held on Saturday, 21st February 2009 in the Clarion Hotel, Liffey Valley, Dublin. The event was very well supported, with around 60 attendees - both adults and childen - joining us for the day.
Irene Gerety, Osteopath, gave an informative talk on "The Benefits of Osteopathic Therapy" with particular emphasis on the benefits for children. Jessica Sheppard, Paediatric Dietitian spoke about "Nutrition and Turner Syndrome". And TCGI chairperson Fiona Jones, herself a Primary School Teacher, gave a talk on "Turner Syndrome and Education".
Copies of the presentations will shortly be available on the downloads section of our website.
Our New Website
We would like to thank Nancy Hickey and her husband David for putting together our new website. As it is new, it is very much still a work in progress and we would be open to suggestions as to what it should contain and any articles people wish to add to it would be very welcome. We will officially launch the website at this year's AGM and we will have the opportunity to chat about it then.
France 2008
A few adult members of our group took a trip to France in August and it proved a great success. They met up with a few girls from the Turner Support Group in England as well as quite a large group from France. They went on trips in the Brittany area and the Irish contingent headed to Paris for a few days. It was great meeting up with the other groups and was an enjoyable trip for all. The following is Christine's account of the trip.
As is now tradition, last year we went away together to Kilkenny. Someone suggested that for this year’s trip we take a house in France, great idea. So we sent an email to the French Turner group telling them what we were planning with the English group and maybe we could all join up. Before we knew it they had found a house in North Brittany for 20 people !!!!
So, on the 16th August, Niamh, Paula and myself set off, destination Port Blanc, a small village just north of Lannion. We left Dublin Airport for Stansted where we joined our three UK friends. From there we flew on to Dinard. On arrival in Dinard we hired a 7 seater car. Wow, a big, big black one with blacked out windows!! Every gadget and Gismo available. Even a button which made the pedals longer. Don’t worry I wasn’t driving, Niamh was our brilliant driver for the week. I was just navigator, a job made very easy as we even had Sat. Nav. So once we worked out what all the gadgets were for, we set off for Port Blanc, I had been told less than 2 hrs drive!!! Why didn’t I start the Sat Nav then!? Anyway by the time we got North of Lannion it was already getting dark and we drove around all the lovely country roads before we found the house at 11pm. So much for my navigational skills. The next day I made sure to get the Sat Nav working.
Women's Mini Marathon 2008
The world’s largest all-women sports event with over 40,000 women took place on Monday June 2nd along the streets of beautiful South Dublin where women walked, trotted, jogged or skipped the 10km mini-marathon on a fantastic summer’s day.
Thank you to all who took part in this year's Dublin Women's Mini Marathon on behalf of TCGI. The total raised was €1200. This money is greatly appreciated by the group as it is one of our most important fundraising events of the year. It helps to fund our A.G.M. and other expenses we have during the year. We hope to have a group participating this year again particularly as the international conference is coming up in August.
If you are interesting in participating in the 2009 Dublin Flora Women's Mini Marathon and raising sponsorship for TCGI, please contact us at info@tcgi.ie Christine Podger will have sponsorship cards at the AGM for anyone wishing to participate. There will be more information at the AGM.
AGM 2008
Our AGM. last February was well attended and enjoyed by all. Their were many topics of interest to all. Miriam Fallon, endocrine nurse, gave a talk about current practice in growth hormone treatment. Patricia Kennedy, Sticks and Stones, did a workshop about bullying with the children and teens. Valery Kelly a family counsellor gave great advice to parents on how to help their child deal with Turner Syndrome and had some helpful tips for the adults too.
Dr Edgar Mocanu from the Human Assisted Reproduction Unit, Rotunda Hospital took us through the fertility options for women with Turner Syndrome. This was very informative and helpful to all while bearing in mind continuing medical research and advances. Trainers from the Icon Fittness group kept the children and teenagers moving while Joy Needham gave us tips in makeup and beauty to keep us looking our best.
